Requesting Continued Prayers For Gage

Thanks for all the Loving Support and Prayers for Gage…

healing-he-sees

Update for Saturday February 21, 2015!

Hey Everybody!!! This is a Gage update…

He was admitted to the Hospital on Thursday and kept overnight for his next Chemo Infusion. We were hoping and praying for a quick and easy process, and we got it (Thank you God)! He is struggling a bit with swelling in his legs and cute little face the last couple of days and so we had hoped to find out whether we need to worry about that, but didn’t get an answer. Regardless, Thank you for the prayers that this process would be easier than in the past and that he continues to improve every day.

The IV went in on the first try!!!!! Yay!!

He’s had roughly 9 of them and this is the only one to go right in!! We’re off to a great start! Because his Blood Count is so low, his veins don’t lie to take the needle like normal. This causes a problem when drawing blood and putting the IV’s in.

When his Blood Results came back, his Creatine (kidney function) is getting better!! It was at 2.7 last week and 2.4 today (It should be at .5 so we still have a way to go)!!! His blood count went up a little too! 9.5 Versus 9.3 last week. A smidge closer to the 14 it is supposed to be at!!! This is all good news!

We don’t think the swelling is abnormal for what’s going on.

They are more worried about the occasional high blood pressure that’s happening with it all. So they are adding high blood pressure medicine (as needed) to his array of meds. He will continue to get the shots to increase his blood count every couple of weeks (Krista gets to give him shots at home). He had to get one before he went home from the Hospital on Friday. They seem to be working a little! Since his levels are slowly creeping up.

According to Krista under the circumstances Gage is doing really well! I think he’s bored and sick of hospital food and we are all REALLY tired. Ultimately though he’s good!

Gage, Krista, Travis and Jazmin have felt much love through the support and Prayers from everyone. This has been a scary, hard and painful journey with Gage. His recovery from the Kidney Damage has come slower than we thought and would like, but it IS slowly coming!

God Is Amazing

I said a Prayer For You

Even though the progress has been relatively slow but steady, we know God is there holding their hands.

The Lord holds us in his firm and loving grip. They have an army of friends who are standing with them, an army who is traveling with them on this journey (yup, that’s you).

For that they are truly grateful. Thank you!!

Send Gage your love and support in the Comments below and PLEASE keep Praying…

Find past Medical information and updates on Gage below:

Prayers Needed For Crazy Medical Problem

Update on Gage’s Vasculitis

Gage is Out of Surgery and Feeling Good

Gage’s Kidney levels are getting worse

Gage Update For Friday Morning

Gage’s Medical Update- He still needs our Prayers and support

Gage’s Medical Update For Sunday

Gage’s Kidney problems

Gage Went To The Doctors Today- Thursday’s Update

OK, here’s the scoop! We need to keep Praying!!

3 choices Saying

Gage had a Doctors appointment today with the Kidney Specialist. His Kidney Levels are slightly worse but they say that’s not uncommon after the Chemo because the cells are dying.

Read about his Kidney problems here at- Gage’s Kidney problems

His Blood Count is slightly better then it was last week. Good news, since he only has half the amount of blood as the rest of us.

He has to be admitted for his next Chemo Treatment now and they moved the date up to next week Thursday. He also now has to get 6 months of Chemo verses the original 3 months. His Chemo Treatments will be every 2 weeks for the next 2 Treatments and then jump to 3 weeks apart for the next 6 months.

He went to school for a half day on Monday and Wednesday but wasn’t able to make it on Tuesday because he overdid it on Monday and was sick from it. He didn’t go today either, mostly because of his Doctors appointment.

We really need to keep praying, this isn’t turning out as good s they hoped it would.

Leave Gage your words of witty wisdom and support below. He really does read them all and loves to here that so many people care!!!

given this life saying

Gage’s Kidney problems

Kidney Disease Food Chart

Kidney Disease Food Chart

This is a summary of the Kidney’s and what they are and aren’t doing for Gage.

from my post Gage’s Medical Update For Sunday

Gage’s Kidneys are working at 25% right now. They are not producing the Hormone needed to create Blood and Bone Marrow. He had to get a injection in the hospital to make his body produce the hormone. They are hoping that his Kidney’s will start producing the hormone on its own again so he won’t need more of that injection. 

Chronic-kidney-disease

Chronic-kidney-disease

What do my kidneys do?

The main job of the kidneys is to filter wastes and extra water out of your blood to make urine (pee). Every day your kidneys filter about 120 to 150 quarts of blood—that’s about 30 gallons— and sift out one to two quarts of extra water and waste products. This waste and extra water become urine (pee).

Your kidneys: Gage’s Kidney’s aren’t doing this….

  • Control chemicals and fluid in your body
  • Help control your blood pressure
  • Help keep your bones healthy (Produce a Hormone that makes Bone Marrow)
  • Help you make red blood cells

What is kidney disease?

Because your kidneys filter waste, regulate blood pressure, make red blood cells, and keep bones healthy, when your kidneys aren’t working as well as they should, your overall health begins to decline. When your kidneys have been permanently damaged and aren’t functioning as well as they should, it’s called chronic kidney disease (CKD), or kidney disease for short. The  damage to the kidneys from CKD can get worse over time.  If the damage is very bad, your kidneys may stop working.  This is called kidney failure.  If your kidneys fail, you will need dialysis or a kidney transplant in order to live.

Dialysis starts when your Kidney function drops to 15%

When should I start dialysis?

National Kidney Foundation (NKF) guidelines recommend you start dialysis when your kidney function drops to 15 percent or less—or if you have severe symptoms caused by your kidney disease, like shortness of breath, fatigue, muscle cramps or nausea and vomiting. Your doctor will help you decide, based on lab tests that measure how much kidney function you have left and on your symptoms.

How is CKD treated?

With CKD, the damage to your kidneys is usually permanent.  It cannot be fixed, but you can take steps to help slow down the CKD and keep the damage from getting worse.

  • Control your blood sugar if you have diabetes
  • Keep a healthy blood pressure
  • Eat a heart healthy diet (low in salt and fat)
  • Exercise most days of the week
  • Keep a healthy weight
  • Do not smoke or use tobacco
  • Limit alcohol

If you treat kidney disease early, you may be able to slow it down!

Gage’s Medical Update For Sunday

Gage and Krista At Home

Gage seems to be doing better..

On Friday after coming home from the hospital Gage’s Medical Update- He still needs our Prayers and support he was exhausted. He slept a ton, and then got to sleep in on Saturday morning. During the day on Saturday he had more energy and had a lot of visitors come see him. That’s good for his recovery, keeping his spirits up.

He is exhausted and weak because his Kidney’s are only functioning at 25% and not making the blood and Bone Marrow that they are supposed to.

It’s a good thing they have him on so many Steroids, it will build his muscles up for the weakness lol.

He goes back in next week on Tuesday for a blood draw and then to the Nephrology/Rheumatology Clinic (Kidney Doctor) on Wednesday. Hopefully they will find out a lot more then.

His next Chemo Therapy Treatment is in 2 weeks.

Gage also has to eat a low sodium diet. Krista is struggling with recipes and finding food for his low sodium diet, if you have any recipes to share put them in the comments below.

Keep up the prayers and comments to show Gage our support.

I promised you more information about his Kidney problems:

Click this link to learn more  from my post about Gage’s Kidney problems

Gage’s Medical Update- He still needs our Prayers and support

This is as of 1:31 pm on Friday – Gage needs our prayers and support more than ever now that he will be at home and not closely monitored by the hospital staff. This is what we know since Gage Update For Friday Morning. The Kidney Doctor just met with them. They are letting Gage go home today. He said the inflammation in his system is going down. That means he will likely only have to do 3 more Chemo Therapy Treatments verses 6 like they initially thought. This is good news, if he continues to improve.

They won’t know whether his kidneys are making Bone Marrow on their own for the next few weeks. They have to do a few more blood tests (a few weeks’ worth). Please say Prayers that he doesn’t have to continue getting injections to produce blood. Since his Kidney’s aren’t doing it on their own.

He will get weekly blood draws to check blood and kidney function. So it will be a while before we know if his kidney function will ever improve or just stay working at only 25%.  If you want to know more about his disease read this post from yesterday Gage’s Kidney levels are getting worse.

They expect him to be tired for a couple of weeks but he should be mostly back to normal activities after 3 weeks or so. Best part is that the rest of his infusion treatments should be outpatient. Yaaa!!

A little snafu happened this afternoon, the nurse took Gage’s IV out and all was good for a minute. He went into the bathroom to get dressed and he started pumping blood out of the IV site. After 10 minutes of pressure the nurse has him taped up and good to go. They aren’t sure why that happened, it might be from the medications he has to take. Hopefully it’s nothing serious.

Continue to post comments for Gage below this post. He loves to know he has all of your prayers and support more than anything else.

I will post more in-depth later about his Kidney Disease (problems)….. I will also continue to keep you updated once he gets home and settled in…….

Gage Leaving Hosptal

Gage Leaving Hosptal

Gage Update For Friday Morning

Keep Praying! It was a long night. Gage started his 1st Chemo Treatment at 9:30 pm last night. They had to wake him up every hour to pee until 5:00 am. The Chemo can’t sit in his Kidney’s or Bladder or it will cause more damage.

They had to wait all day yesterday for his urine counts to go up high enough. They needed to be at safe levels for the harshness of Chemo Therapy to not hurt him more.

As of 11:58 am – We are waiting for the Doctors to have a meeting and then come back with an update. I will update you once we find out more today.

Gage is so happy, surprised and grateful for all the support and prayers from the post Gage’s Kidney levels are getting worse. It is keeping his spirits up to read the comments and hear that sooo many people care about him. He loves to laugh, so thank you for the humor at times in the comments too.

Show your support! Comment to Gage at the bottom of this post..

Here is a cute picture from last night of Gage and my Grandson Brayden chillin’ in the hospital bed watching Finding Nemo.

Gage and Brayden

Gage, Brayden and Travis